CEDPSP want to hear what YOU think are the top research priorities for adolescent females and women affected by anorexia nervosa.
Unfortunately, there are still many unanswered questions about anorexia nervosa. The Canadian Eating Disorders Priority Setting Partnership (CEDPSP) is a national project funded by the Canadian Institutes of Health Research (CIHR), and our hope is to identify and prioritize the unanswered questions about adolescent females (15 years +) and women affected by anorexia nervosa based on the perspectives of those most affected by the illness.
If you're a person with lived experience, caregiver or healthcare professional, here’s how you can help:
- Fill out this short, 3-question survey, available in both English and French until March 23rd to share your thoughts on the most important research gaps: CEDPSP Survey
- Share this survey with your networks by circulating this e-mail, posting the link on social media, and telling your family, friends and colleagues about this project.
- Visit our webpage for more information about the project and feel free to share it widely.
We are looking for people to participate in a project on eating disorders (diagnosed or not diagnosed, including difficult experiences with food-body-eating relationships) in the Latinx community (people who identify as Latinx or with roots in Latin America, Abya-Yala, the Caribbean, and the diaspora, including Afro-Latinx, Indigenous, mixed, Xicanx, or other).
As a participant, you would be asked to participate in a team to plan how a non-hierarchical, body- and fat-positive, participant-led, healing and community-focused project in the Latinx community might look. You will participate in the planning stages of a project that will take place this upcoming spring (You may also choose to participate in the project in the spring too if you wish.)
Your participation would involve coming to one or two meetings, each of which is approximately two hours long. In appreciation for your time, you will receive TTC tokens to cover transportation costs, snacks, and compensation (5-10 dollars, depending on how many people we have at the meetings). For more information about this study or to volunteer for this study (email updates) https://goo.gl/forms/onuQIeaO2rzCKn6D3 or visit https://cocimientosgroup.wordpress.com/ or come join us in person Thursday Nov 30th or Dec 14th at 442 Dufferin St, Toronto, or contact Isabel Urrutia at firstname.lastname@example.org if you have any questions!
Patients, recovered patients, and healthy volunteers needed for a genetics and anorexia nervosa study
Reseachers at the University Health Network are participants for a study to learn more about the role of the EPHX2 gene in metabolizing fatty acids. You are invited to participate if you are a woman between 18 and 60 years of age and fit into one of the following categories:
- You have never had an eating disorder
- You have recovered from anorexia nervosa
- You are currently diagnosed with anorexia nervosa
Posted July 5, 2017
Jessica Cumming, a Master’s student in Counselling Psychology at the University of Victoria (UVic)., is collecting the stories of young women who have been hospitalized in general psychiatric or pediatric wards for Anorexia using a qualitative interview methodology. Participants must have been out of the hospital for at least 6 months prior to being interviewed for the study.
Interested participants may contact me by email at email@example.com or by phone/text at 778-678-1620. Further details about the study and what participation will entail are provided once they make this initial contact.
If you have any questions or concerns about the ethical approval of this study you are welcome to raise them with me, or contact the UVic ethics committee at 250-472-4545 or firstname.lastname@example.org
Call for research participants - Females ages 18-65
Title: Executive Functioning and Emotion Processing in Recovery from Anorexia Nervosa
University College London, Research Ethics Committee number:8515/001
This study aims to explore the thinking styles in women who have recovered from anorexia nervosa compared to women who have never had any eating disorder. The study is open to female participants between the ages of 18-65 who have either no history of a previous eating disorder, or who have a past history of Anorexia Nervosa.
The study involves an initial brief screening with the researcher via skype or over the phone (approximately 20 minutes), followed by a set of online tasks and questionnaires (approximately 30-45 minutes).
Participants will have the choice of being entered into a draw to win one of ten £10 Amazon vouchers (or equivalent, aprox. $15.00CAD), or having a donation made to an eating disorders charity. Participants will be compensated for both the initial screening and the second stage of the study.
Further details on the study can be found in the Participant Information Sheet.
If you are interested in participating or finding out more about this study, please contact the student researcher: Leah Kugelmass, email@example.com .
Research supervisor, Dr Lucy Serpell, firstname.lastname@example.org
Do you currently have an eating disorder? Do you think you might have an eating disorder?
Complete this three-part online survey and we will donate $10 AUD to an eating disorder charity on your behalf
Researchers at the University of Melbourne are seeking individuals aged 18 years and over and who i) are currently diagnosed with an eating disorder, or ii) think they might have an eating disorder, for a study of treatment attitudes, media use, and stigma.
The study initially involves a 25–35 minute online survey and two shorter 15–20 surveys that will be emailed to you 3 and 6 months later, respectively. We will donate $5 AUD for each of the second and third times you complete the survey. You can choose which of 7 eating disorder charities will receive your donation. If you complete both the second and third survey, your total donation will be $10 AUD.
We are seeking 500 participants. Thus, the total possible donation to eating disorder charities is $5000 AUD.
Click to learn more about the study and to participate: https://melbpsych.co1.qualtrics.com/jfe/form/SV_1Y17wI11kbstmtL
We are currently seeking women age 18 or older who are struggling with symptoms of bulimia nervosa to participate in a free, 12-week emotion-focused therapy group. This group is being led as part of a doctoral dissertation through the University of Alberta in Edmonton, and has received ethics approval through the Health Research Ethics Board. Participating in this research will involve the completion of a series of surveys, as well as the completion of group treatment. If you are interested in participating in this group, or would like further information, please contact Jennifer Bartlett (email@example.com).
Caregiver Education: Skills-based education for those supporting an individual over the age of 17 with an eating disorder is available for free through Toronto General Hospital as part of a research study. Participants are randomized (like flipping a coin) to either an online version of the education or a workshop version of the education. Please see the flyer for details or contact firstname.lastname@example.org.
Family-Based Treatment for Transition Age Youth: Treatment for Anorexia is available through Toronto General Hospital, SickKids and North York General Hospital as part of a research study. Treatment is family based and for those between the ages of 16 and 24. Treatment is free and requires families to attend weekly sessions that are 1.5 hours long. Sessions are split between individual time for the client with Anorexia and time for the entire family. Please see the pamphlet for more details or contact email@example.com
Posted November 30, 2015
How should we talk about eating disorders in the community? An expert consensus study.
Do you have expertise (including as an advocate with lived experience) in the field of eating disorders?
Are you aged 18 or over?
If you fit these criteria, you may be eligible to participate in an online research study about how to talk about eating disorders in community settings.
For further information, or if you are interested in participating, please visit the research website at: http://talkabouteatingdisorders.weebly.com
Contact Joanna Doley (PhD student, Department of Psychology and Counselling, LaTrobe University) at: firstname.lastname@example.org
This study has ethics approval, UHEC approval number 15-062.
Posted November 4, 2015
10 WEEK TORONTO YOGA CLASS BEGINS MARCH 31ST- CONTACT POLETTKM@MCMASTER.CA FOR INFORMATION.
Do you have a history of or currently have anorexia, bulimia or EDNOS and want to try using moving meditation as a complementary therapy?
If you answered yes, you may be eligible to participate in the MEDYTATE study: a research study investigating the effects of either a Fung Loy Kok (FLK) Taoist Tai ChiTM or a standardized yoga series on your eating disorder symptoms and mindfulness skills.
The purpose of this study is to examine the effect of moving meditations as a complementary therapy for the treatment of the symptoms of eating disorders.
Anyone over the age of 16 who has been diagnosed with anorexia nervosa, bulimia nervosa or eating disorder not otherwise specified who is seeing, at minimum, a professional care provider, such as a therapist or a general practitioner as a primary care provider is can enroll.
You will be asked to complete a series of questionnaires on your first and last class and attend either 10 weekly 1.5 hour Tai Chi classes or yoga classes once a week. It is free to participate. Classes will take place at various locations in Toronto, Hamilton and Burlington from April 2015 to April 2016.
Those that complete the questionnaires and 5/10 classes will receive a FREE class pass to a local yoga studio!
CLASSES FOR FALL START EARLY OCTOBER!
This study has been approved by the Hamilton Integrated Research Ethics Board (#15-177-S)
ARE YOU PREOCCUPIED WITH FOOD AND WEIGHT?
Professor Allison Kelly, Ph.D., C.Psych., and her research team at the University of Waterloo are seeking participants for either or both phases of a two-phase study, lasting two weeks each.
We are looking for participants who meet the following criteria:
- 17 years or older
- You watch what you eat
- Body mass index (BMI) in 15-19 range
In Phase 1 (2 weeks), you will be asked to complete short daily recordings of your eating and weight-control behaviours via a Smartphone app. In Phase 2 (2 weeks), you will also be given the opportunity to learn a self-help exercise aimed at helping you cope with distress related to your eating, weight, and body image issues. Please note that we will be taking your weight as part of this research study.
In appreciation of your time, you will receive $50 for each study phase, for a total maximum of $100.
To find out more about the study, please contact our research team:
519-888-4567 x 39121
ALL INQUIRIES ARE CONFIDENTIAL
This study has received ethics clearance through the research ethics committee at the University of Waterloo.
Are you a health care provider who has worked with persons with eating disorders?
Are you interested in participating in a study about health professionals’ experiences with eating disorders in Atlantic Canada?
You can participate if you:
- Are a health professional in one of the following fields: medicine, nursing, occupational therapy, psychology, dentistry, social work and dietetics
- Worked with individuals with eating disorders in Atlantic Canada
- Are willing to participant in a telephone or face-to-face interview
Research in the Neurobiology of and Treatment for Anorexia Nervosa
Researchers at the Toronto General Hospital and the Centre for Addiction and Mental Health (CAMH) are examining the underlying neurobiologic disturbances in anorexia nervosa and exploring new and innovative treatment methods for anorexia nervosa in order to improve outcome for people suffering from this disorder.
There are 3 current studies underway that are now accepting participants.
Who is qualified to participate in a study?
Qualified participants have:
• A diagnosis of Anorexia Nervosa – amenorrhea criterion not strictly applied
• A BMI between 14 and 18.5
• Are between 18 and 55 years of age
***** If you do not currently have anorexia nervosa but struggled with it in the past, you may be eligible to participate in Study #3 *****
All studies are conducted under the supervision of Dr. Allan Kaplan, MD and have received full approval from the Toronto General Hospital and CAMH Research Ethics Boards and from Health Canada.
For more information about any of these studies:
∗ Please get in touch with research coordinator Laura MacKew directly by phone (416) 535-8501 ext. 33877 or by email at email@example.com.
∗ Read more about the research Dr. Kaplan is supervising here on the CAMH Blog.
Posted March 23, 2015.
Researchers at Yale School of Medicine are conducting a survey to explore parenting, weight, and eating disorders.
The survey is anonymous and takes 10-30 minutes to complete. We are interested in the opinions of parents (mothers AND fathers) who have a child between 6 years old and 15 years old.
To read more about the study, and to participate, go to:
Approved by Yale's Human Investigation Committee (Institutional Review Board), study# 1411014857.
Online Educational Tool for Parents/Caregivers of a Youth with an Eating Disorder
Do you think your child might have an Eating Disorder?
Do you want to learn about eating disorders and how you can help your child?
Purpose of the research: To understand if the online educational tool is helpful to parents/caregivers of a child who may have an eating disorder.
Who can participate: Parents or caregivers of a youth (9-18 years old) who may have an eating disorder or eating difficulties.
Topics covered include:
1. What is an eating disorder?
2. Medical risks of eating disorders
3. Understanding eating disorders
4. Essential components of treating pediatric eating disorders
5. Supporting a child with an eating disorder: practical advice from professionals
6. B.C. Meal support video
7. Recommended resources
Ethics: This research project has been approved by the Children’s Hospital of Eastern Ontario Research Ethics Board.
The BC Mental Health & Substance Use Services is developing a Parent Resource Guide for parents to provide tools, tips, advice, and strategies on how to get through the struggles of having a child with an eating disorder.
Link to survey: http://surveys.phsa.ca/s/ParentResourceGuide
Understanding Young Women’s Reactions to Eating Disorder Prevention Messages
NEDIC is collaborating with Dr Jennifer Mills and York University on this new research study, Understanding Young Women’s Reactions to Eating Disorder Prevention Messages, in order to bring prevention theory into practice. Generously funded by Women’s XChange, this study will help NEDIC to understand how to implement effective prevention messages in our work with young women across Canada.
You may be eligible to participate in the study of you are a woman aged 18-25 who can commit 45-60 minutes of your time. Download the recruitment flyer to learn more.
Posted August 28, 2014
Anorexia Nervosa Treatment Study
A multi-site treatment study for Anorexia Nervosa is currently being conducted at University Health Network (Toronto General Hospital), Southlake Regional Health Centre, North York General Hospital, and SickKids.
This research study is investigating a new approach therapy: Family-based Treatment for Transition Age Youth. This form of therapy is based on a model of family therapy used in pediatric programs and has been adapted to better suit individuals between the ages of 16 and 21. Individuals from 16-21 are more independent and while they still require family/friend/partner support to overcome their eating disorder we appreciate the different considerations needed to treat a young adult.
Posted March 5, 2014
Yoga for Bulimia and Binge Eating Disorder Study
Do you have bulimia or binge eating disorder? Are you new to yoga?
If you answered yes…
You may be eligible to participate in a research study investigating the effects of an 8-week yoga program developed specifically for women suffering from bulimia or binge eating disorder.
About the Study
Women who have been diagnosed with bulimia nervosa or binge eating disorder and have no, or limited yoga experience are being recruited to participate in this research study. The purpose of the study is to explore the effects of yoga on women with bulimia nervosa or binge eating disorder. This study will help to help inform the practices involved in the treatment of bulimia nervosa and binge eating disorder.
We are looking for women 18 years of age or older to participate in a yoga study. You will be asked to complete a series of questionnaires and attend 8 weekly 90-minute yoga classes. Participation is free, however, you will be required to pay a $20 fee to cover the cost of supplies. All yoga classes will take place on the University of Alberta campus in Edmonton Alberta and will be taught by a Registered Yoga Teacher.
Participation in this study consists of two phases. During the first phase, you will be asked to answer a series of online questions to determine your eligibility to participate in phase two of this study. Eligible participants will proceed to phase two, during which they will have the opportunity to complete the 8-week yoga program. This study has been approved by the University of Alberta's Research Ethics Board.
If you have any questions please feel free to contact Maggie Brennan at
1-888-260-4760 (toll-free) or firstname.lastname@example.org
Posted January 27, 2014
Binge Eating Disorder Study
Researcher: Kate Hickey, PhD student, University of Calgary
Purpose of the study: To gain understanding of the troubles and experiences with seeking help of individuals with binge eating disorder.
Participation: I am seeking individuals who believe that they are or may be suffering from binge eating disorder.
I will be conducting semi-structured interviews about their understandings of their trouble and any experiences with seeking help.
Participation can be arranged in a way that is most comfortable and convenient for you (e.g., interviews can be conducted face-to-face, through telephone, or through Skype).
Ethics: This research has been reviewed and approved by the Conjoin Health Research Ethics Board (CHREB) at the University of Calgary.
Deep Brain Stimulation for the Treatment of Refractory Anorexia Nervosa: Pilot Trial
Principal Investigators: Dr. Andres M. Lozano (Division of Neurosurgery, University Health Network) and Dr. D. Blake Woodside (Department of Psychiatry, University Health Network)
Study Co-coordinator: Dr. Nir Lipsman (University Health Network)
Investigators at the University of Toronto's University Health Network have initiated and are now enrolling a phase I, pilot trial of Deep Brain Stimulation (DBS) for the management of severe and treatment resistant Anorexia Nervosa (AN). DBS is a neurosurgical procedure involving the insertion of electrodes into structures believed to drive pathological behavior, which are then connected to a subcutaneously implanted battery. It is a 'pacemaker' for the brain, and is a non-destructive, non-lesional, reversible and titratable means of modulating electrical activity in the brain. DBS has been used for over 25 years to manage disabling movement disorders, such as Parkinson's Disease and Dystonia, and has recently shown promise in the management of refractory psychiatric diseases, such as Major Depressive Disorder (MDD) and Obsessive-Compulsive Disorder (OCD).
Among psychiatric disorders, Anorexia Nervosa is the condition with the highest rates of morbidity and mortality. Currently, few treatments are available that address the underlying pathophysiology of the illness, leaving a large proportion of patients susceptible to the long-term sequalae of untreated disease. Advances in the neuroimaging, genetics, and physiology of AN and its overlapping co-morbidities, such as OCD and other anxiety disorders, suggest that key brain structures generate and maintain the condition. In a highly select population of patients, who have failed multiple previous treatment attempts, it may be possible to disrupt the pathological thoughts and behaviours of AN, by disrupting activity in these key brain structures with DBS. Similar approaches, at the University of Toronto and in multiple centers around the world, have been applied to refractory MDD and OCD, with promising results.
We have begun a phase I, pilot, safety and feasibility trial exploring DBS in patients with chronic and refractory Anorexia Nervosa. Inclusion criteria include male or female patients between 20-60, disease duration over five (5) years, and able to comply fully with frequent study visits. Exclusion criteria include BMI<13, patients with history of psychosis, active neurologic disease, alcohol or other substance abuse disorder in the last 6 months (excluding caffeine and nicotine), contraindications to neuroimaging, presence of serious medical comorbidities that preclude surgery, and pregnancy. Patients below a BMI of 13 can be admitted pre-operatively to increase their weight appropriately.
Study duration will be one (1) year for each patient following surgery. All ongoing AN treatment will continue during the course of the study, and patients will be followed closely by the neuromodulation team (neurosurgery and psychiatry) at University Health Network, during and following the study, as well as at regular intervals, as required.
Contact: For more information about this study, please contact Dr. Nir Lipsman, study-coordinator, at pager number 416-790-1780 (leave a call back number), or email at email@example.com. If you feel you have a patient who may be eligible or interested in this study, please contact Dr. Nir Lipsman, and/or make a referral directly to Dr. Blake Woodside, c/o Toronto General Hospital, at fax number 416-340-4198.
Posted August 10, 2011