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When you flip through the fashion magazines, you won’t find my body anywhere. When you watch TV, you might see me as a background character, meant to offer inspiration to the show’s main hero. I am the woman with a visible physical disability. You probably see my wheelchair, my cane, and my guide dog. Or you may notice my scars, my speech impediment, and my caregivers…yet, in many ways, I am invisible.
Does anyone else remember learning the “golden rule” in elementary school? It was in my second grade classroom written in yellow cursive, on royal purple card stock. “Do onto others as you would have others do onto you”. Yes, this is an extremely valuable lesson to teach young kids because the human nature of adolescents is more concerned in doing things that benefit themselves over classmates, siblings and parents.
We are featuring two posts, from two authors, Liz and Marina, as part of this Holiday Season Feature.
We would also like to take this opportunity to thank all of those that have contributed to the NEDIC Blog in 2013. Your stories, combined with your unique perspectives, have made for informative and engaging reads over the last year. This will be our final post of 2013, but we will be back in January 2014 to keep these important conversations going.
When I was in the 10th grade, like most students, I started thinking about what I was going to do after high school. However, unlike many high school students, I was concerned about who was going to help me get ready every morning once I moved out of my parents’ home. I have muscular dystrophy, a progressive muscle wasting disease that impacts the muscles in both my legs and arms. I had been just two years shy of using a wheelchair at that point. Going from standing to sitting all day, I had gained some weight. And weight gain for a disabled woman, I learned, was not an option.
When she told us of her newfound wheat allergy we accepted it for what is was and began on the road to helping her adjust her life and be wheat free. This was our first mistake.
All survivors have their war stories and I am no exception. In my case, the battlefield was my body and the enemy was the bully in my head, the mean girl who told me I was fat. Today she is known as #Mia – Twitterspeak for bulimia.
My eating disorder wasn’t a phase. It was a disease born in the corners of my mind that caused me to cycle through endless episodes of bingeing, purging and starvation. I could talk to no one about Mia, because the injurious words that she could wield were still better than the label I would be assigned if anyone knew my secret.
I’ve struggled with accepting my body the way it is now, and at times I still do. It can be hard for someone with an eating disorder to see and feel their body changing. This is made worse when I feel full after eating, if I wear clothes that feel a little too tight, or if I am having a bad day and look in the mirror.
If you’re struggling with an eating disorder, you may be able to relate to constantly feeling numb. Personally, making decisions and identifying my feelings became so difficult in my state of neutrality that I wasn’t really living, I was merely coasting. While this blog post may not reign true for all individuals suffering from an eating disorder, this is my story on how I am recovering from anorexia. It took time, but learning to accept love is what wrenched me out of the depths of my eating disorder and back onto stable ground.
When you’re younger, you’re told you should follow your dreams. I always took that to heart and believe that if I had the power to do anything, than why not spend my time doing something that I love? Part of following your dreams means taking risks, and when I was a kid I was teased and I had practically zero self-confidence. Additionally, I was also slightly overweight at the time, which caused me to analyze and pick apart everything about how I looked. So even when opportunities came my way, I was too self conscious to even think about going for it.